On Losing a Pet, Part 3: Euthanasia

Since I’ve started working in hospice and thinking about death a lot (some might even say too much), I’ve become very struck by the different way we approach end of life care for animals and humans.

“Duuuhhh,” you may be saying to yourself.  True, my observation is not a brilliant one.  But what I find interesting about the difference between animals and humans is how ingrained our acceptance of it is.

As I mentioned earlier, we’ve said goodbye to our original batch of kitties over the past few years.  We put two “down,” and the other, Elle, died before we were able to do that.  We felt terrible about Elle.  We as a culture have so embraced euthanasia for animals that we as a family felt like we did something inhumane by not speeding her death along.  Did we force her to suffer needlessly?  We were so used to bringing our pets to the vet when it was “their time” that I kind of forgot that they could die on their own.

This, of course, is quite different for people.  In most places it is illegal to have a person “put down.”  It is illegal where I live, and every now and then I meet people who ask, sometimes sarcastically, if I can just give them a pill to end it.  I certainly meet people who would like to get death over and done with.  I usually assure them that we will be able to manage their pain, and then gently suggest that there can be growth at the end of life, that there can be beauty in the time before death, and that this time in their life has meaning.  I happen to believe all of that.  I’m not an advocate for assisted suicide.  I’m not even very well versed on the subject. But I can see its attraction.

We have a very chatty new vet, and upon learning that I work in hospice, he told me the story of his father’s death, which was not a good one (I hear a lot of stories like this.  I’ve learned that it’s better to not wear my hospice name tag out in public.)  He then told me that when his mother is reaching the end of her life, he will have no problem helping her speed it along–quietly, of course.  As a vet, he felt that he would be very comfortable with such an action.  If you’re used to putting four-legged creatures out of their misery, I can see how it would be hard to watch the two-legged woman who gave you life wait it out.

Of course, animals are very different from humans.  Or, at least we humans choose to believe that they are.  We kill animals all of the time.  I just ate several different species at dinner.  (What, exactly, was in that meatball, anyway?)  We don’t kill and eat humans, at least not without a lot of legal repercussions.  And while in this country we tend to distinguish our cute little cats and dogs from livestock and wild animals–we don’t eat dogs and cats, for example–we are allowed to kill them, and we do so quite frequently.  And they don’t have to be sick, either.  Due to lack of space, many animal shelters are forced to euthanize any animal that isn’t adopted within a certain amount of time.  And we’ve all heard about those sacks of unwanted puppies and kittens filled with rocks and put in the river.

You can euthanize for behavioral issues, too, and sometimes are required to.  I’ve had a couple of aggressive animals in the past, and could have easily had them “put down.”   I couldn’t do it, though.

Twain was my first cat.  I didn’t realize that it wasn’t normal for a cat to routinely attack you and draw blood, though it did explain why she had been brought to the shelter in the first place.  But three years later, when I found that I spent every morning fending her off with my pillow and that she had narrowly missed making off with one of my eyeballs,  I called it quits.  My vet suggested that I euthanize her, as she thought she was too dangerous to work with.  But, instead, I brought her to a no-kill shelter with a “behavioral therapy” program.  I explained the situation and strongly suggested that they never adopt her out to a family with children (or any humans at all, I added under my breath).

I did not miss Twain very much.

My luck wasn’t much better with my first dog, either.  Edy, my border collie, attacked me over a bone that I gave her for her first birthday. I took a different approach with her though, and we went through intense training.  But I was always a little afraid of her, and I never trusted her again–she could be moody and snarky.  Nine years later, when she started growling at our first child as she crawled across the floor, there was no longer room for negotiation.  Still, though, I couldn’t put her down.  I couldn’t even bring her to a shelter.  It wasn’t easy, but I managed to find a family with much older children who understood her history and issues, and said that they had always wanted a moody 10 year-old border collie with hip dysplasia. Hard to believe, but true.  I visited Edy several times over the next few years and they adored her.   She had a wonderful life with them, and I was glad that I did not have her euthanized.  Logistically, I very easily could have.   I think any vet would have agreed to do it.  But emotionally–morally?–I couldn’t bring myself to do it.

So, clearly, I am not comfortable with sentencing an animal to its death. *

But, then why do I feel that it is so necessary to euthanize our animals at the end of life?  Why did I feel guilty about not euthanizing Elle?

And if that’s the way I feel, why am I not gung-ho about the assisted suicide movement?

I don’t know the answers to these questions.  I can accept that we treat animals differently than humans, and that we have different standards for them.  Maybe it’s because animals are completely dependent on us, and that it is hard to imagine that they will experience “growth” at the end of life.  Maybe that’s why I feel like we need to speed things along for them, so that they don’t suffer.  We try not to let humans suffer, either, but I’m not comfortable speeding things along.  I’m guessing that society has a lot to do with it, too.  The sociologist in me assumes that these differences are, at least in part, socially constructed–i.e., that they aren’t inherent.  In any case, these beliefs are very ingrained in our culture.  So ingrained that I really can’t figure out why I feel the way that I do.

I’d like to hear your thoughts on this, though.  Any insights into my conflicting beliefs?  What are your beliefs?  Are they as contradictory as mine?  Leave a comment under the link below.

And, as always, thanks for reading.

*Unless I plan on eating it.  I know this is another moral contradiction.  But as it is I can’t eat wheat or corn so I’m just going to close my eyes and pretend that I’m not a hypocrite and make my life easier and eat the damn burger.  Without the bun.

On Losing a Pet: Part 2

I recently re-watched the first episode of the Sopranos.  I loved that show, and not just for the wonderful acting and writing.  Despite being (partly) Italian, it greatly expanded my knowledge of Italian comfort foods (I think I asked my husband what Gabagool was during every episode).  As you might remember, in that very first episode the late, great James Gandolfini’s character Tony is fixated on some ducks who hang out in his swimming pool.  He loves these ducks.  Tony, of course, is a violent mobster who has a lot of blood on his hands.  He doesn’t seem to place too high a value on human life.  But he has a soft spot for animals: the ducks, his racehorse, his nephew’s dog–those losses touch him in a way that the human carnage left in his wake rarely does.

I’m not exactly Tony Soprano, but I admit that animals can sometimes get under my skin more easily than people can, especially in film or books.  The scene where Tony’s nephew Christopher kills his girlfriend’s dog by obviously sitting on it hit me harder than all of those other grisly deaths.  I never finished watching Benji in the theatre as a kid because I cried so hard when he got lost that my mom agreed to take me home.  When the guy who boarded our dog lost his mom, I offered condolences.  He accepted them, but then said that he was actually more upset about the death of his dog, which had happened shortly after his mom had died.  His mom was a difficult person to love.  His dog was not.

Loving a pet is generally a very safe thing to do.  You are usually not worried about getting screwed over by your dog.  (Cats, as we all know, are a little sneaker.  Kidding!  (Mostly) just kidding!)  I think our grief about losing a beloved pet is so easy to access because it is so uncomplicated and so close to the surface.  In contrast, relationships with our fellow humans are often quite complicated.  We have to work hard to get them right, and we aren’t always able to do that.  Our feelings about our human loved ones may be buried deep; they can be difficult to access as they are often infused with all sorts of challenging emotions.  But for a beloved pet, all we generally feel is love.  We might get frustrated at times (trust me, I know), but in the end we generally feel that our animals are innocent, incapable of ulterior motives, and so our love for them remains pure.  When we lose a friend or a family member, we may have to grapple with lots of unresolved issues, complicating our grief and opening a floodgate of complicated emotions.

When a pet dies, we usually just feel sad.  So very sad.

Or guilty. Sometimes we feel really guilty.

We are responsible for our animals–they are actually considered our property, and by their very definition domesticated animals cannot take care of themselves.  Froma Walsh, who is an expert on dying and grief–and a huge dog lover–has written about the loss of a pet (Walsh, F., Family Processes 48:481-99, 2009).  She talks about the difficulties involved in the accidental loss of a pet, such as running one over, leaving a dog in the car on a hot day, etc.  The blame and guilt associated with such losses can be overwhelmingly debilitating.   It’s often made worse when the responsible party fails to understand, or at least acknowledge, how big the loss really was:  to some people, it’s “just an animal.”

The statement “it’s just an animal” gets at what Walsh describes “disenfranchised grief,”: when the loss of a pet is “unacknowledged, trivialized, or pathologized,” (p. 487).  It’s hard to know how to react to the death of your best four-legged friend if the people around you can’t understand what all the fuss is about.  As I mentioned last week, we really don’t have a good way of handling the loss of a pet in our culture.  Other pet lovers might understand, but in general we just try to move on quickly, which can often further complicate our grief.  We need to be able to find a healthy way to grieve.

Last week I mentioned that the day after one of our kitties died, we went out and adopted a younger version.  That’s true, but I’m not proud of it.  Actually, if I were the type of person to keep score, I might add that I strongly advised against it, but was overruled.  Obviously, I’m not that type of person 😉  As someone fairly well versed on death and grief, I really felt that we should take some time to mourn poor Spencer, who had been part of our family since before we had ever been a family.  Pets are not just objects that can be replaced with a swipe of a credit card, and I didn’t want our children to think that they could be.

But, Petco was next door to the grocery store, and they just happened to be having an adoption event.  And we just happened to go in there.  And there just happened to be an adorable little kitty that looked just like Spencer, just 17 years younger.  And my older daughter, who had sat with me while the vet put Spencer down, and who had been very much in touch with her grief both before and after his death, begged me.  And then my other daughter begged me.  And my husband begged me.  And against my better judgement, I caved.

And you know, aside from the fact that he had a highly contagious case of ringworm that he spread to our other cat, our dog, and the anonymous person writing this post, it actually turned out pretty well.  (Ringworm isn’t quite as gross as it sounds–it’s basically just athlete’s foot.)  The kids didn’t ignore their feelings for Spencer–they still mourned him, but in the mean time they had a lot of fun playing with the new kitty (at least until we discovered his ringworm–a little late, obviously–and had to isolate him for a while).

But still, though, as a professional I would not suggest rushing out to get another pet right away.  Instead, find some way to memorialize your pet, perhaps with some sort of ceremony or tribute.   I would also suggest that you find people to talk to who are sympathetic to you loss.  Many places offer pet loss support groups, or there are also pet-loss hotlines.  The Humane Society offers these tips and suggestions on dealing with the loss of your pet.

Whatever you end up doing, I think the key is to find an honest way to express your grief.  You need to feel like your pain is legitimate.  Disenfranchised grief is bad news.  If you bury your sorrow, it will eventually manifest itself in other ways, and none of them are good (Tony Soprano, for example, tended to bash people’s heads in).  Of course, that goes for all grief.  But even if we as a society don’t do a good job of acknowledging how much is lost when a pet dies, it doesn’t mean that the loss is not a profound one.  Find a shoulder to cry on.  You deserve it.

Next week: pets and euthanasia

 

 

On Losing a Pet: Part One

If you look on the “about me” tab on this blog, you’ll see that I describe myself as having “too many pets.”  We currently have 2 dogs and 3 cats.  Four of the five pets are part of a relatively new crop, joining the family in just the past year. We’ve been having some problems integrating everybody, so it’s been a bit…messy.  There has been a constant stream of unpleasant surprises, and the phrase “too many pets” has been running through my mind quite a bit lately.

Although these surprises have added a great deal of stress to our home (a.k.a. “the house of excrement,”), we do love our furry friends.  We’ve clearly acquired too many, too quickly, and may have over-extended ourselves.  It happened as a result of our having to say goodbye to one, then another, and then finally the last of our “starter” kitties, all of whom were acquired in the previous century.  Apparently, we wanted to make sure we had an adequate supply of fur and love.

That’s the thing about animals.  They bring so much to your life.  And then they die.

The death of a pet brings up some interesting issues: Their lifespans are so much shorter than ours (unless you have a parrot), that chances are you will have to suffer their passing.  Though, of course, sometimes pets outlive their owners, which is another issue.  For many children, the death of a pet is often their first major loss, and can color their perspective on death for the rest of their lives.  Our relationships with pets are often uncomplicated ones, which can make us feel their deaths all that much more.  Yet I think a lot of us feel uncomfortable grieving in the same way that we do for humans–our society isn’t really set up to handle the death of a pet the same way it handles the death of a family member.    And, of course, while euthanasia is a very sticky issue in the human world, it’s the norm in the animal one.  And while that affords us much more control, it also forces us to literally decide when our loved one is going to die.

And so for the next couple of weeks or so I’m going to write about some of  these issues.  Thanks to those of you on Facebook who suggested this (if you go to my page here, you can see a picture of Otto, our pug.  Handsome, isn’t he?).

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To get us started, if you’ll indulge me, I will share one of my own experiences:

I adopted my first cat when I was in college, and have had a steady stream of cats and dogs ever since.  Lucy, though, was my favorite.  She was a little shy and skittish around other people, but she would always come and curl up to snuggle when I most needed her to.  I felt we could commune with our eyes, and that we loved each other unconditionally.

Several years back, as part of a fellowship in Medical Ethics,  I participated in an activity led by the “death-and-dying lady.”  Our task was to list all of the living beings we loved (including animals).  We then had select one to be taken away from us. And then another, and another, until they were all taken.  (Figuratively, of course.)

I didn’t yet have a child to put on the list, but I did have a spouse and all of my family to put on there.  What makes that exercise memorable for me is where I put Lucy on it.   I am fortunate to still have all of my immediate family living, and I am fairly certain that they make up most of my readership (and I don’t come from a large family).  So I won’t go into details.  But I will say that I kept Lucy with me until pretty close to the end.

I now have children, and my love for them has eclipsed my love for any four-legged creature that has been, is, or will be in my life.  I can’t really describe the love that I have for my girls–it is so deep and far-reaching that at times I find it staggering.  And perhaps because they are young, it is uncomplicated and incredibly fulfilling. (That isn’t to say that it won’t continue to be, but I have heard a story or two about the pre-teen years and beyond.)

Regardless,  I was a mother of two when Lucy’s time was drawing to an end–much earlier than I had her slated to be taken on my little list–and I did not have an easy time of it.  For a couple of years I had convinced my husband to foot the bills for constant vet visits and managed to master the art (to an extent) of giving her sub-cutaneous fluids.  She hated them, but she still seemed to enjoy life more than she hated getting the fluids, so we kept going.  But then, finally, it wasn’t working any more, and she was clearly at the end.  I couldn’t stop crying as she let me hold her little emaciated body through that last night.  The next day I dropped my older daughter off at preschool and arranged for a friend to pick her up. I walked into the vet’s office with my infant daughter’s car carrier in one hand and Lucy’s crate in the other.  The vet was kind and gentle, and Lucy was barely alive.  She was gone within seconds of the injection.  My daughter’s little head soaked up my tears as I held her close for support.  I was pretty devastated by Lucy’s death.  But, I had a child to pick up and lunch to make and laundry to do.  It’s not like the world suddenly gives you space to indulge in your grief.  You don’t even have a funeral to plan.  You might call a few people or send an email out, but then you have to get on with it.

Lucy has been gone five years and I still miss her.  I can imagine resting my head on her soft little body, listening to her purr.  I lost someone who understood me completely, who brought me nothing but joy.  It’s a little hole that will probably never be filled.

We’ve said goodbye to several more pets since then.  My older daughter actually came with me to put our last cat down.  As sad as it was, the whole experience really went a long way in helping her process her grief, and I think it removed some of the fear surrounding death for her.

Of course, wandering into Petco the next day and adopting a younger lookalike (and his accompanying case of ringworm) helped a lot, too.  You can’t really do that when people die.

So, next week I’ll write more about some of these issues that surround the death of a beloved pet.  If you have a comment or suggestion or story that you want to share, please do so in in the link below this post.  And, as always, thanks for reading.

On the “Good Death”, part 3

Hello again.  Today I’m going to finish up my little series on what a “good death” is (or isn’t).  I’m especially excited about this post because a) I’m going to talk about one of my favorite books, and b) while writing it I am forced to take a break from trying to figure out which summer camps to sign my kids up for. (Why must that be so complicated? And done so far in advance?  We just got more snow, for goodness sake.  Sigh.)

Anyway, last week I wrote about what Ira Byock, MD thought a good death was, and how to achieve that.  In that post I mentioned a string of difficult deaths that I was involved with, and how much I struggled with them.  I won’t go into details, but in the last of those deaths, the family, including the patient, had consistently refused to allow us to even bring up the possibility of her death, even though she was clearly dying.  She was very young, and there was a lot of anger and hope and denial.  At the last minute the family called 911 and she died en-route to the hospital.  I heard about that deaths via voice mail as I drove up to meet a dear friend (B, as a matter of fact) at a spa to celebrate my 40th birthday.  I thought about her death for the rest of the ride up there.  Her death joined me in my “waterfall bath,” my massage, and the steam room.  I kept trying to shove her death out of my head, or at least to keep it from hogging the tub, but it wouldn’t budge.  Not only did it not split the bill, but it didn’t even offer to leave a tip.  (This was my first spa experience.   And O-M-G, that stuff is pricey).

So, there I was, wrapped in a spa-issued fluffy white robe, drinking cucumber-infused water, mulling over her death, and trying to read my latest book club selection, which happened to be Being with Dying by the Buddhist monk Joan Halifax.  (Coincidentally, Ira Byock wrote the introduction).  I’m too cheap to buy books, so I kept trying to not drip on the library copy.  I am guessing I was the only person at the spa that day that was reading it, though I could be wrong.  I admit, a large part of me wanted to reach over and grab a moist copy of People, but I persevered.

I’m glad I did.  It took me a few weeks to get through it, but it saved me from being swallowed by my angst.  Halifax is a medical anthropologist who has spent a great deal of time with the dying.  Her book is about her approach to death as a Buddhist teacher, and is written for the dying, those that care for them, and anyone who might fall into one of those categories in the future (i.e., all of us).  In a nutshell, she posits that there is no such thing as a “good death.”  She talks about having the goal of “radical optimism”: not having expectations for any specific outcome.  According to her, there is no “good” or “bad” death.  She strives to set aside judgment and a sense of “knowing,” but to rather practice “not knowing.” She suggests that we as health care providers leave everything we know in the car before we visit our patients.  We are there to help people along on their journeys, to bear witness, but not to impose our beliefs or expectations on them.  Essentially, “it is what it is.” (I love how ubiquitous that phrase has become.)

What I found especially reassuring was that she feels that denying death, grieving death, defying death, accepting death, liberating death…are all legitimate approaches to death.   She even talks about how some people scream at the very end of life, and how we should reconsider automatically medicating them.  Perhaps they are angry, and they should be allowed to express that anger.

I’m far from an expert on Buddhism, though I have read some about it.  It appeals to me on a lot of levels, and if I had more time and didn’t strive to stay in my pj’s for the entire weekend (yep, I’m in them right now) I would probably pursue it more.  I’m not exactly unique in this.  Buddhism seems to be a bit trendy lately…I see a lot of folks wearing prayer beads, and it’s hard to know if they use them to pray or if it’s more of a fashion statement.   But what I love about Halifax’s book is how accepting it is of everyone’s experience at the end of life.  And as someone who is witness to a variety of different approaches to dying, I find that very reassuring.  Because a lot of people don’t have what a lot of us would deem a “good death.”  And, according to Halifax, that’s okay.

And, I’d agree with her.  After muddling through that series of less-than-ideal deaths, that’s what I came up with.  I now feel like everybody is on their own journey.   We as the hospice team come in at whatever point we come in, and our job is to provide whatever support or assistance that we can.  But the nature of that support is dictated by our patient, and the journey is the patient’s, not ours.  They may be denying their death, they may be angry about their death.  We can bear witness to that struggle.  We need to provide opportunities for them to talk honestly about how they feel.  They may not feel the way that we want them to feel.  Maybe with time they will come to that much-hoped for stage of “acceptance.”  But maybe they won’t.  That is for them to determine.

And, that is for us to accept.

At least, that’s my take on it.  What’s yours?  Don’t worry–I won’t judge you!

And, now to get back to walking that fine line between over-scheduling my children and leaving us with too much unstructured free time.  Ah, the joys of modern parenting…

 

 

On the “Good Death” part 2

In my post last week, I wrote about my discomfort with passing judgment on outcomes that can be beyond our control, such as health status and even death.  As Americans (or perhaps just as humans), though, we tend to be judgmental creatures.  I’ve been told by others that I am not particularly judgmental (or was it that I was lacking judgment?  I don’t recall…).  Regardless, I have found myself doing it, judging away.  In hospice we often talk about “good” deaths.  The centenarian who died peacefully surrounded by his family?  A good death.  The almost pathologically independent woman who only required help for the last few hours of her life?  A good death.  I did it last week when describing my paternal grandmother’s death: quiet and peaceful, a good death.

Of course, as I also mentioned last week, when you get into the habit of describing something as “good,” then you are forced to describe other things as not-good; i.e.,  “bad.”  This blog was born of an essay I wrote and circulated to a few close friends and family.  It was basically done as therapy.  I had just been party to several deaths in a row that I felt pretty awful about.  There had been a lot of “denial” (another term I’m not fond of); there were children that had not been well prepared; there had been attempts at heroic medical efforts; death had been found in an ambulance; etc., etc.  I felt that everything that we try to avoid or ameliorate in hospice had occurred, and it had occurred more than once.  And as the social worker to these families I was struggling with what had gone wrong, and what I could or should have done to “fix” it. (“Fixing” things can be a bit of an issue in social work.  I’ll probably write about that some time, too).

So, I wrote all of that out and sent it to a few folks.  I’ll tell you what conclusion I came to next week.  Those were tough deaths, and most of us would be hard pressed to say that they were “good.”  My immediate reaction was that they were the opposite of good.  My feeling was that they were…”bad.”

Were they bad deaths?  Well, perhaps.  My hospice book group recently finished the book Dying Well by the great Ira Byock, MD.   This book is a classic in the field, and I enjoyed it.  Byock is a leading hospice physician, and in the book he shares stories about the patients in the Montana hospice that he started in the 1990’s.  He talks about the idea of “dying well,” which for him means growth and accomplishment during the dying process.  In most of the stories he shared, there is a lot of growth and accomplishment as people head toward death.  They repair relationships, become closer to those they love, grow as people and eventually achieve acceptance of their fate.  The stories are very gratifying.

In his book, Byock talks about how to distill what needs to be accomplished at the end of life.  I thought he had a nice way of eliciting this.  He suggests the following questions:  “If a hurricane came suddenly and you had 15 minutes to live, what would be going through your mind as you lay dying?  What would be left undone?  Is there anything you haven’t done or said to someone important?”  Asking those questions seems like it would go a long way to getting to the heart of the matter, to figuring out what still needs to be done.

Our little hospice book group was somewhat floored by how intimately involved Byock seemed to be with his patients and their families.  His hospice at the time sounds like it was a small one, and it appears that he was quite embedded in those homes.  We have a mid-size hospice, with several MD’s, and while the rest of the team (nurse, social worker, chaplain) might become very involved, it is rare for us to see the MD have that level of involvement.

What actually struck me more than that, however, was how much guidance he provided to these families in terms of how they could (should?) “die well.”  He seems to  have had very strong  ideas of what a good death looked like, and what his patients needed to do to accomplish that.  For starters, relationships needed to be completed, and could be done so by saying “I forgive you”, “Forgive me,” “Thank you” “I love you,” and “Goodbye.”

There doesn’t really seem to be much wrong with that formula, but for me personally, I would be hesitant to insist that people follow it.  He recounted one story where he forced an uninvolved son to tell his dying mother that he loved her.  To a very angry man he said, “You have to realize how all of your anger and venom is a very destructive way to avoid admitting how much you are losing.” (p. 76).  I almost dropped the book when I read that–I have a hard time imagining ever telling a patient that they “have” to realize anything.  However, his pep talk was apparently very effective, and the man ended up “dying well.”

I don’t know.  Maybe I’m not far enough along in my career to insist on such things; perhaps with time and confidence I might find that I have started to tell people what to do (and how to die).  Byock’s also an MD, and…well…they tend to be more comfortable…prescribing things (including, but not limited to, medications).  Far be it for me to criticize the truly great Byock.  His book gave me a lot to think about.  It has inspired me to join my patients in looking at their lives and impending deaths more deeply.  I do that with some patients–some of them are eager to do so, and it’s very rewarding to go there with them.  Others are much more reluctant, and I’m working on getting better at digging a little deeper with them.  And then there are still others…you’d be surprised at how often we in hospice are forbidden by our patients or their families to use the word “death” (or even “hospice”).

I’ve met people who have had good deaths.  But I’ve also been privy to final journeys that do not come even close to Byock’s description of how to “die well.”  Sometimes people don’t have enough time to come to terms with the end of their lives and to make peace with it and those they love.  A lot of people are in hospice for a matter of hours, and there’s little hope that their hospice team is going to be able to do a lot for them during that time, either, regardless of what we suggest (or tell) them to do.  Other people who have more time still never seem to be able to fight their way through their fear or sadness or anger to “die well.”  Maybe they lived their whole lives that way, and they’re not going to change just because they’re dying.  Or maybe they didn’t have the right guidance.  Or maybe it was just too hard.

So what about those people?  What are we to make of their deaths?  I’ll talk more about that next week.  But I’m curious about what you think.  What, for you, is a “good death”? What would you need to do to “die well”? And what does it mean if you don’t manage to do that?

 

 

On the “Good Death”: Part One

I remember once talking to a woman whose husband was dying (this tends to happen when you work in hospice). He was not, as we say, “going gently into that good night.” He had some form of dementia, and had become mean and demanding and aggressive and miserable.  As a result, he was making her miserable, too. She was so hurt by all of this. “I don’t understand,” she said. “We are at the stage in our lives where we have had a lot of people close to us die. I have had so many friends describe these beautiful scenes toward the end of life, where everybody comes closer together, and there is love and sorrow and peace. There are heartfelt goodbyes. They made dying sound like it was just wonderful. But my husband…all he does is scream at me. Terrible, awful things. What am I doing wrong?”

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My last grandparent, my paternal grandmother, died a few years ago.  She was in hospice on the other side of the country.  She was in her mid-90’s and, as they say, “sharp as a tack.”  She was ready to die, and when her time was drawing to an end, she started to slip away.  I happened to fly in to see her on the day she perked back up, and I got to chat with her a bit, telling her I loved her and saying goodbye as she enjoyed the chocolate ice cream she had requested.  My uncle, aunt and I took turns staying with her.  She occasionally had pain which the able hospice team was able to control.  She slipped back into her coma and died in the middle of the night with her youngest son at her side.  Her passing was peaceful: A quiet, dignified end to a quiet, dignified life.  I remember thinking that I hoped to be as lucky in life and in death as she had been.  In my mind, she had a very “good” death.

My maternal grandmother died about ten years earlier than my paternal one.  She had dementia, most likely caused by a series of small strokes. My parents, who worked full-time,  moved her and my grandfather, who was completely bed-bound and unable to communicate due to a massive stroke, into their home and hired a full-time caregiver.  While it worked, it was very stressful (and expensive) for them (I was out-of-state for all of this).  I had been very close to my grandma, who had been both devoted and independent.  She had regressed to a child-like state, and was often confused and distraught.  She could usually only be consoled with sweets (clearly, I get it from both sides) and a stuffed teddy bear.   I remember sitting on the stairs, tears running down my face, as I watched this once proud woman nervously rock back and forth, muttering to her bear.  She died at home, with hospice.  While that sounds nice, her death wasn’t.  She probably suffered a final stroke, and she hemorrhaged to death.  My parents were there with her, and that last scene of terror will haunt them forever.  For us, there was no dignity in her death.  For us, her death was not “good.”

 ********

Back when I was in graduate school in the late 1990’s, the book Successful Aging was published.  It was written by two famous researchers in gerontology, and it distilled years of studies into some practical advice for the rest of us.  We do not have to be tied to our genes, the book promised.  We have control over how we age.  If we do it right, we can “age successfully.”  It was a well-researched, helpful book, and it provided some very good advice.  I don’t remember most of that advice (I’m guessing “regularly stealing the Reese’s peanut butter cups out of your kid’s Halloween stash” wasn’t in there),  but the book continues to stand out in my mind.  What struck me way back then and continues to strike me now is the basic premise of “success.”  Okay, say you do your allotted amount of aerobic exercise and eat lots of Omega 3’s and build good, solid relationships and follow your passions.  When you sail through your 80’s and maybe even your 90’s without heart disease or cancer or dementia you can pat yourself on the back and give yourself a little credit.  You succeeded based on your hard work.  Nice job.

But wait a minute.  If you succeeded, what does it mean when your sister is diagnosed with cancer, or your best friend gets dementia?  They clearly didn’t succeed.  Did they….fail?  And, if you succeeded because you worked hard, did they fail because…they didn’t?

Was it their own fault?

******

This line of thinking crops up at the end of life, too, on different levels.  The hospice movement has come a long way in furthering our acceptance of death as a natural process.  It has helped to erode the notion (still held in some quarters of the medical community) that death is synonymous with failure.  That’s a truly wonderful thing, especially given that we are all going to die (eventually).  In hospice, you often hear the phrase “death with dignity.”  I think that’s a nice idea, and given the choice, I think most of us would prefer to have a dignified death than an undignified one, whatever those two options look like.  We in hospice strive to help people to feel dignified as they reach the end of their lives, to help them on their journey to acceptance and see their lives as a triumph instead of their death as a defeat. To have a “good death.”

But that “death with dignity” phrase always makes me cringe a little, too.  In my mind, it’s a lot like the term “successful aging.”  Because let’s face it:  A lot of deaths don’t look very dignified.  And if we are working toward the ideal of “the good, dignified death,” what does it mean if we don’t have one?  Did we screw up somewhere along the line?  Did our loved ones?  Did our hospice team?  Is it somebody’s fault?  And if so, whose fault is it?

Over the next couple of weeks, I’m going to explore the concept of a “good death” a little more.  Rest assured I haven’t written those posts yet, so if you have thoughts about the topic or what you’d like me to write about, please feel free to share them.  I’m also trying to make these posts a little shorter, as they seem kind of long and I’m guessing it’s hard to find the time to read them.  I didn’t manage to make this one as short as I had hoped to.  If you have thoughts about post-length, too, feel free to share.  And, as always, thanks for reading.

The Circle of Life: Part 2

Last week I wrote a little about my thoughts on watching my friend B give birth to a new little girl, and how birth is both similar to, and different than, death. I’m going to continue in that vein here.

In that first post I talked about how there can be beauty in death.  However, as someone (my mother) pointed out, some deaths are not only emotionally heartwrenching, but also very physically painful to both endure and watch (and, at times, very messy).  That, of course, is also true.  Sometime soon–maybe next week–I’m going to write a little about what a “good death” looks like, and if that’s even a valid concept.  For the time being, let me acknowledge that some deaths are not beautiful, on any level.  That being said, some deaths are, which I think is a very comforting thought.

Anyway, on to the topic at hand: birth v. death 😉

This being modern day America, drugs are often involved in both birth and death. Of course, there are always people who prefer to do both without them. I’d say that was more true in birth than in death, but I’m not actually sure that’s the case. The drugs can make you loopy or sedated, of course, and that can definitely alter your experience (see my story from last week). When pain medications are used, comfort is the goal in both cases. We often see families struggle with how much pain medication to give for fear of overly sedating the patient. It is a delicate dance, but I think the dance is pretty similar for birth, too.

The human body is made to endure all of these experiences: being born, giving birth (well, at least females are), and dying. And left to its own devices the body will usually prepare itself for each of them. I think we are probably all familiar with the work the fetus and mother go through–it’s pretty dramatic, the change from a cell to a full-fledged human; the ability of a woman to pass a bowling ball from her cervix. But the body prepares for death, too, when allowed to. As the body shuts down and rejects food and water, the body creates its own pain medication and the dying often seem to be awash in peace. They say that the dying also do lots of internal work as well, preparing for their final journey. If you really want to be amazed by the experiences of the dying, read Final Gifts.  Part of them is here with us and part of them has gone on to their next destination. They are not really still in this world, at least not completely, even if they are technically still alive. While there are certainly exceptions, many times the dying just slip into a coma-like state. Things can be very peaceful, they slow down, and then they are gone. And, as one of you pointed out last week, often times people manage to do it just when everyone has stepped out.  I will write more about that some other time, too.

Both birth and death can be incredibly stressful situations, and they are both, to some extent, beyond our control. There is usually little sleep to be found amid either type of situation, which in itself is stressful. In my opinion, you should never underestimate the power of sleep.  Due to the uncertainty of the process and/or the outcome, in both birth and death people are often struggling to gain control. The labor and delivery nurses at B’s hospital were joking that whenever they saw a woman bring in a “birthing plan” it meant one thing: they would end up with an unplanned C-section (my birthing plan, by the way, consisted of only one thing: Have a baby.  But I got that unplanned C-section anyway). Both situations require a lot of work and help. And, in both situations, all of that stress can cause a lot of discord and meltdowns. In death it is complicated by grief and loss; in birth it is complicated by hormones. I was surprised to find myself talking to my friend and her family in much the same way that I do in hospice: “Everybody is overtired and stressed out, and may not be their best selves right now…it’s natural to try to control things when they seem out of control…just try to go easy on each other…” When I was a new mom, exhausted and sleep deprived from working (unsuccessfully) ’round the clock to increase my milk supply , at one point I had a complete fit because everybody else went to check out the new Target while I stayed at home to nurse.  I was voted “nicest personality” in high school, but I literally screamed at my in-laws.  Yup.  Stress…it’s really something.

Stress can come not just from lack of sleep, but also from the unknown.  From predicting sleep cycles (for both newborns and the terminally ill) to what happens to us after we die; how we are going to live with this new child or how we are going to live without someone we love…well, we just don’t know.  For both newborns and the dying, often times the only constant is change.  Just when you think you have things figured out, it all changes: sometimes for the better, sometimes for the worse.   You can’t plan ahead: the only thing you can be certain of is that at some point it’s going to change again.  There’s that control thing again; the only reassuring part is that if things are bad, at least you will never have to live through that particular day again.

In some ways, it seems like there’s a little more certainty in death.  It’s a bumpy road getting there, of course–I don’t mean to minimize the terrible despair that often goes hand in hand with knowing that death is near.  But, once you are at the point of knowing that it is going to happen, that’s pretty much all that can happen.  Assuming pain is controlled, there really isn’t a “worse case scenario” (though some deaths can be very difficult, as mentioned above).   With birth, there’s very little certainty.  A million things can go wrong.  My friend B, like myself, is not a spring chicken–I think some of her lady parts were described as “geriatric.”  She was all too aware of all of the things that could go wrong, and I think that’s why she wanted me there.  Even though we didn’t talk about it, there was an undercurrent of worry in the room.

B flew through the birth with flying colors. Our worry for her health and the health of her baby were for naught. Of course, we all knew what was going to happen next. As soon as that baby was out, the real work was going to begin. Babies, as it turns out, are a lot easier to take care of when they are the inside of you than when they are on the outside. At the end of life, the physical work comes to an end when the life ends, for the most part. The work of grieving, however, can last for a very long time.

That being said, I’m sure that most of us would prefer being born to dying, either as a witness or a participant.  That’s not a shocker.  Birth is generative: another new life is created.  We end up with this cute little thing in our arms.  With death, someone has left us.  One is a gain, the other is a loss.  They are a package deal, of course: we are all born mortal, and to be born is to eventually die.  Birth is almost always met with happiness, and death almost always with sadness.  We do live on, though.  Our lives may end, but our impact can be immortal.  What starts with the miracle of birth need not be diminished by the miracle of death; it is merely transformed.

Oh, well, so much for me not being sentimental–those last couple of sentences there were pretty mushy.  Sorry about that.

So, what do you think?  Every birth and death experience is completely unique.  Do your experiences gel with mine?  Do I seem way off to you?  Share your thoughts on the comment link below–I’d love to hear them.  And, as always, thanks for reading.

The Circle of Life, Part 1

This week and next, I’d like to use this space to share some thoughts about the apparent endpoints of life: birth and death.  I should forewarn you that I’m not an overly sentimental person.  Years ago, I remember my mother rushing to remove a dead bird from the porch, fearing that it would be eaten.  “Why?” I asked — “It’s the circle of life, you know.”  This probably came as no surprise to her, as I had once asked her if I could dissect my parakeet after I found it dead on the bottom of the cage (her answer: “No”).  So it would be hard for me to start gushing about how both the beginning and end of life are miraculous, transcendent experiences (even though I think that they are).  Instead, I’ll just take some time this week and next to comment on some of the similarities and differences that I have noticed.  To dissect them, if you will 🙂

I have a confession to make: I’ve never actually witnessed a death.  I’ve seen people moments before they die, and I have seen them moments afterward.  But I haven’t actually been there during.  I’m far from being a hospice veteran, and I’m sure at some point I will be there when it happens. But even for our nurses, who tend to have much more hands-on time with the patient than the rest of us, it sometimes takes a while before they witness a death.  Because we visit people at their homes, we aren’t there all of the time.  Usually families call us as the patient is starting to enter the dying process. We make sure they are comfortable, and then we leave them to it (unless there is a need for us to stay).  And then the nurse and possibly the social worker or chaplain will come after it’s all over to pronounce the death and provide comfort.

Still, though, given my line of work I have a pretty good idea of what takes place during death, and a very good idea of what happens before and after (which I assume is why you’re bothering to read this).

Up until a few weeks ago, I felt that my knowledge regarding the beginnings of life was pretty deficient, despite having given birth to two children myself.  When you are the one giving birth, you can get pretty distracted.  In my case, our first daughter was born via an unplanned C-section. I was very drugged up, and didn’t know that she was out of me until my husband showed her to me. Apparently, I had given birth. Or, that’s what they told me, anyway. As I said, I felt like my education about the start of life was incomplete.  (In case you’re wondering, daughter #2 was a VBAC–you can look it up–but, still, I couldn’t really see anything).

So, when my dear friend, let’s call her B, was gearing up to deliver her third child and she asked me to be there for her birth, I jumped at the chance.  I was honored to be asked to support her, and I was also excited to get to bear witness to this miraculous event.  I wondered how the beginning of life would compare to what I am now more familiar with: the end of it.  I hoped the experience would somehow lead to another Elton John -inspired blog post title.  As you can see above, it did.

I won’t go into too many details of B’s experience here.  To set the scene, however,  I will say that, fortunately, it went incredibly smoothly.   Everyone was healthy and it went very well.  That baby just flew out of her and it was, in every sense of the word, awesome. Did it seem miraculous?  Absolutely.  So, it was all good, and the next day I got to hold her little girl for over an hour. So ,as far as I’m concerned, it was great.

I love babies.

Anyway, on to the business at hand. Being in the hospital with B was, of course, very different than visiting the dying.  The three of us–her, me, and Daddy– sat around chatting amiably,  looking forward to what was to come.  On my way out to pick up food I got into the elevator with two women who marveled at how much nicer our lobby was than the floor that they were on.  I explained that it was the maternity ward, and they looked at each other and paused.  They were definitely not on the maternity ward, they said slowly.  I was jostled out of my good mood by the realization that our floor was probably the only consistently happy one in the entire hospital.  People only go to the hospital if they are sick or they are pregnant.  Fortunately, we were in the latter category.  The other people on the elevator were not.

Yet while sadness is always present at deaths, you might be surprised at how much happiness can be found there, too.  (Please remember that I am only talking about deaths in hospice–anticipated deaths.  I can’t speak to sudden, unexpected deaths.  Those, I would imagine, are very different).   There can be relief that the suffering has ended.  But often times there is also celebration for the life that the person has lived.  I do tear up in my job, but it might not be for the reasons that one would expect.  I usually cry because I am witnessing such beauty and love (okay, maybe I’m a little sentimental).   I have entered many homes where the patient is simply enveloped in love.  I cannot imagine a better way to end my time on earth than to be comfortable, peaceful, and surrounded by people who adore me.  It really doesn’t seem like it can get better than that.  And when I see those scenes, and I see them often, I cannot express how beautiful they are.  Can a death be as beautiful as a birth?  Well, maybe.  Different, of course.  But still beautiful.

It’s also not usually as messy. We don’t see trauma victims in hospice, and while sometimes our deaths are messy, they aren’t always.  Births are always messy.

Really messy.

Births are also a lot noisier.  First the noise comes from the mother (though my friend B was very quiet and polite), and then it comes from the baby.  I haven’t quite figured out when babies quiet down.  Mine haven’t.

Births are noisy, joyful occasions. Deaths are usually hushed affairs.  Part of that, of course, is because they are often so sad.   They are both very real experiences: at their most basic level, they are the two things that life is made of, and neither event is for the feint of  heart.  But one of the reasons that I love my job is that I now know that with the sadness can also come great beauty.  And that is almost enough to make a gal turn sentimental.

I will probably get even more sentimental as I continue on this topic next week.  Brace yourself.

P.S.: I love to get comments!  I know some of you have been contacting me with the comment boxes that I had been putting at the bottom of the posts.  As it turns out, that just sends me an email.  You can send me a private email in the right hand column.  If you’d like to leave a comment for others to see, please go to the “comment” underlined link at the very bottom of this post–it’s in small font.  Thanks!

Controlling the Uncontrollable

I am not, in general, a particularly controlling person. In fact, people often comment on how laid back I seem. And, that’s fairly accurate, to an extent. But about eight years ago, I started to get a lot less sleep and have a lot more demands on my attention. The cause of those two issues was our first child; the result was a newly found need for control.

Our kids are older now and a lot more independent and predictable. Most of the time I can still maintain my equanimity and be my easygoing self. But when I get stressed out, my need for control comes out, too.  And really, it doesn’t take much to unleash it. For example, I am not a great cook. I am competent (usually), but I don’t enjoy cooking and I find it stressful. My daughters like to help in the kitchen. I know how important it is for them to cook with me. It teaches them concrete skills. It helps them value food and nutrition. It brings us closer as a family. And I hate it. I can barely manage meal preparation on my own, much less with four extra little hands grabbing things and then spilling them. So I grit my teeth and do the best I can and try to explain to the kids that I’m sorry and will endeavor to be less stressed out about it next time.

So, that’s me, Ms. Easygoing who discovered a pair of iron fists buried under the blankets of the bassinet. The velvet gloves arrived when the kids entered preschool. Lucky for us, we are all healthy (knock on wood) and have no other major life stressors going on (again, knocking on wood).  When you work in hospice, you are afforded the opportunity to drop into the lives of people who are always dealing with at least one major life stressor, and sometimes more.  And most of the time, when people are having “issues,” it boils down to the same thing: the need for control.

Terminal illness and death are inherently uncontrollable.  They are beyond our control.  And that can be really, really hard to get your head around.

Lack of control comes from all directions.  First, it comes from the diagnosis.  At some point along the line before you enter into hospice someone sat you down and said that whatever is going on with you cannot be cured.  So, right there, you and you family had to accept–at least on some level–that you cannot control the disease.  And, you also had to accept–again, at least to some extent–that you will die from this disease, but you probably won’t know exactly when.  So, that’s another thing you can’t control.  And then, of course, there are the million little, and not so little, losses along the way.  You will probably not be able to do most of the things you used to love to do.  Eventually you may not even be able to take care of yourself on the most basic of levels. Some people, believe it or not, seem to greet these losses with grace and–there’s that word again–acceptance. And others…well, it’s much more of a struggle. Of course, many of those who seem to handle it with grace went through that struggle before they got to the point of acceptance, and might still go through it on occasion.

So what does that struggle for control look like? It can come in different forms.  Anger is a popular option. Anger can go hand-in-hand with micromanaging. Suddenly, nobody can do anything right for you. You complain that you have too many visitors, but when people try to leave you alone, you complain that you’ve been abandoned. There are too many pillows, but then there aren’t enough pillows. You want orange juice. It comes, but then you’d rather have water.  Bossing people around can bring at lest the illusion that you have some control over something, or someone.  Perhaps you will try to control the act of dying itself.  Since you’re apparently going to die anyway, you fail to see the point of sitting around and waiting for it to happen. Screw all these family members at your bedside trying to love on you. You want to it all to be over and done with, and every day you wake up you just get angrier and angrier that you’re not dead yet. Boy, does your family love to hear you rant about how you’d rather be dead–that makes them feel great.

That’s one possible scenario.  It took me a while to decode this next one.  Many of the homes I visit are pristine. I can’t tell you how many times I have walked into a home and exclaimed: “It’s so clean! You have so much to do…how do you keep it so clean? Seriously…how?? Please tell me.” And eventually it dawned on me: this is how the caregiver keeps some control (I think it took me so long to figure this out because the concept of cleaning when you’re stressed out was somewhat foreign to me–I usually prefer to calm down via chocolate. Lately, though, I’ve discovered that sometimes I do it, too. Though, judging by the state of our house, I must not get stressed out very often.) Nothing is out of place in these homes. All of the towels are folded just so. The patient is clean and powdered and lotioned up. Supplies are stacked neatly away. Everything looks perfect and orderly. If you can’t control your loved one’s fate, then at least you can make the bed.

My patient base is very diverse, but hovers around two extremes: incredibly wealthy (we are talking the top few percent, or close to it), usually Caucasian, often not especially religious; and impoverished Black or Hispanic families, often with strong ties to Christianity. The angry scene described two paragraphs ago seems to happen most frequently among men in the wealthy category. These men were movers and shakers, and used to having a lot of control. And, now they don’t really seem to have much at all. And that does not sit well with them. It could hardly be expected to. Those super clean homes seem to be more prevalent among my Black and Hispanic families. Of course, I see a lot of clean homes among the wealthy, but that’s usually accomplished by hired staff, which is quite different.

To delve into generalizations and blanket statements, I would venture to say that, in general, the poor families that I meet have an easier time accepting their situation than the wealthy ones. I think this could be due to a number of reasons, and I’ll mention two of them here. One is that with wealth comes power, which means that you are probably going to have an especially hard time feeling powerless. When you are poor you have probably faced many situations before in which you have felt powerless. And, while I am hardly a theologian, the second reason I’ll suggest has to do with religion. The very religious seem to happily offer up their control to a higher power. They put themselves in the hands of The Lord, and believe that He will guide them. And it really seems to ease their burden. Plus, looking forward to the afterlife doesn’t hurt either. When you don’t have that mindset, you tend to feel that it all falls on you. (I’m not trying to proselytize here; I myself do not subscribe to any particular religion).

So, how does one deal with all of this? Hospice itself was designed to offer up some control: to direct your own medical care, to control your pain to the extent that you want it controlled, to decide where you want to die. The assisted suicide movement is all about offering up some control to the terminally ill. Of course, that’s pretty extreme and not actually legal where I live. Instead, I usually suggest that, when possible, the patient should control things, even if it’s simply choosing to have lunch at 12:00 or 12:30. Another suggestion I usually make is to just acknowledge the frustration that everyone is experiencing. Knowing where that anger and obsession is coming from can go a long way in allowing you to tolerate it. And, when appropriate, I try to gently point out that while the situation is beyond their control, they can still control how they will deal with it.

Of course, that doesn’t mean that they will chose to deal with it in a way that others find to be pleasant. Dying often does not come easy. If you have experiences or suggestions that you would like to share, please tell me about them below.

In the mean time, I have a dinner to prepare in my messy home. Wish me luck.

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Sorry Seems To Be The Hardest Word: What To Say When Things Are Not Good

I used to be the type of person who would say “sorry” for everything.  If you stepped on my foot, I would apologize.  There were times where I felt like I should apologize for breathing.  I’m well over that phase of my life, for better or for worse.  Having now been married for over a decade I have a better understanding how powerful the word “sorry” can be, and how some types of apologies can be more meaningful than others.  “I’m sorry that I screwed up,” for example, is quite different than, “I’m sorry that you’re angry (because you think I screwed up).”

Despite having discovered my backbone, in my line of work, “sorry” still seems to come out of my mouth a lot.  It’s something of an automatic reaction:  “Oh, I’m sorry you’re not feeling well.”  “I’m sorry you’ve had to go through all of that.”  “I heard your husband just died.  I’m so sorry.” I say it as a way to connect with someone’s pain and sorrow, to show that I care, and that I wish things were different.  While it is always sincerely said, it is not always well received.   I have heard “Why are you sorry?  You didn’t kill him, did you?” on occasion.   One of my favorite patients lectured me for a very long time about how the word “sorry” should be removed from the English language as, according to her, it is completely useless.  She had suffered a lot of losses and found the term to be meaningless, at least at the time.  I had to stop myself from saying “sorry” for having said “sorry” to her.

As she grew to trust me, and as she grew sicker, I would still occasionally say “sorry,” and she would tolerate it, and, eventually, appreciated it.    Still, though, that lecture forced me to be much more mindful about when I said “sorry.”  When you are a hospice employee and a patient dies, is “sorry” really the right word?  We were pretty much planning on their death–we aren’t exactly “sorry” about it, and we certainly aren’t trying to accept blame.  When I make my bereavement calls I now tend to say, “I heard your daughter passed away, and I wanted to offer our condolences.”   It seems a little stiff to me, but I’m going with it until I come up with something better.  All of this begs the question, however:  when something sad, or bad, or awful happens, what are you supposed to say?

I don’t think there’s one answer to that question.  I think that no matter what you say, or don’t say, your response should be one that conveys support in a way that is meaningful for the recipient.  And in trying to formulate that response, I think it’s really important to realize that in most of these situations, the problem cannot be fixed.  You cannot make a death, or a terminal diagnosis, okay.  You cannot make someone not feel sad during a loss.  The situation is sad, and they are sad (or angry, which is usually just another variation of sadness), and that is how it probably should be at that moment in time.  I think a lot of us see people suffering and we want to fix it somehow.  But in these types of situations, it just can’t be done.

David Kessler, who seems to be one of today’s death gurus, has published some very helpful, direct advice on what to say in sad situations on his website, Grief.com.  (He cracks me up a bit due to his Hollywood connection–he appears to be a deathbed presence to “the stars”– but I heard one of his presentations and it was very well done.  Plus, his eyes are stunning.)  I think his list is a good one, and I’m not sure I can add to it all that much.  You’ll notice that “I’m sorry” tops the list of the best things to say.  I like the second one, too–saying that you simply don’t know what to say, but that you care–can really go a long way.  A lot of times there really isn’t anything that you can say.  And, trying to come up with something to say–to make it better, to make sense of it–can offend, even with the best intentions.  “It was his time,” “She’s in a better place,”  “You’ll be okay,” can fall flat, depending on your relationship with them and where they are in their emotional journey.

In life, in general, and particularly in these types of situations, I believe honesty is a good way to go.  I often find myself saying “Oh, wow, that’s awful.” With younger crowds, I have given the following little speech: “There’s really no way around it:  the situation sucks.  It just does.  You will eventually get through it, but it still sucks.”  Because a lot of these deaths do suck.  And I think it’s just easier emotionally to acknowledge that and not try to pretend that there is anything okay about it.   Not having to pretend that things are okay allows people to let their feelings and emotions have free reign.  And it’s imperative that we remember that those feelings and emotions may not show themselves in the way we think that they should.  Everybody grieves in their own way.  As long as you’re not a danger to yourself or others, you’re doing it right.

The important thing to do, if you can, is to let them know that you will be there for them while their emotions are going haywire.  Sadly, all too often we avoid the situation, and those involved, because we don’t know what to do or say.  Perhaps we fear that we will make it worse.  Perhaps we don’t want to remind them of their loss.  Trust me, they haven’t forgotten.  You can be there for them to talk to, checking in on them now and then.  You can make them food or mow their lawn.  You can hug them.  You can cry with them.  You can remember the person who once was, and share stories about them.  I often mention to people that the death of someone they loved is a big loss.  You can’t usually go wrong to say that someone’s life was important and that they will be missed, and, just as importantly, not forgotten. And, of course, it’s always safe to just ask them: ask them what you can do, what they need, what they want to talk about. And, if you can, then just do that.

Of course, all of this is a little different if you’re grieving, too.  If it’s your spouse or child or parent or best friend you probably have other things on your mind than just figuring out how to console someone else.  And that can get pretty tricky when you’re surrounded by other people who are also grieving.  Some families seem to be able to come together to support each other in their grief, but I don’t think that happens as often as people feel it should.  You often hear about this when a child dies.  It seems like it is just too much to ask that the parents be each other’s primary source of comfort.  When you’re in the depths of grief it’s hard to try to hold somebody else up, too–it’s nice to have someone who isn’t drowning in the same sea that you are to help you swim to shore.  I always try to suggest to families that they keep the following in mind: they are all wading through their own sorrow, and each of them will express it in different ways.  So when tensions start to flare (and they often do), it sometimes helps to give each other a little leeway, and try not to judge each other–or yourself–too harshly.

So, those are a few of my thoughts on the topic.  I’m hoping that this post didn’t suck, but if it does, I will try to accept it.  And, if that is the case, let me say this:  I’m sorry.  😉

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